When I was first diagnosed with Parkinson’s, five years ago, I hesitated sharing the information. I was not in denial, just cautious. The reality of having a movement disorder, such as Parkinson’s Disease, makes it impossible to hide the disease. I shake. I shake from the time I wake up until the time I go to sleep. The shaking only stops when I am sleeping (an interesting phenomenon) or when the meds are really working. So there is no hiding from this disease unless you physically stay away from people. I am a very social person and enjoy and need the social connections of others so hiding was not an option. Instead, I decided to take a path of being open about my disease. I choose to OWN IT! This means that I am the one who puts a name to all those movement issues that come up all of the time. I own it when I drop my money at the store checkout. I own it when I sway while waiting in the movie line. And I own it when I spill my cup of tea, trying not to burn anyone near me or myself. I simply say, “I have Parkinson’s.” The magic that occurs by my acknowledgement of the obvious movements is amazing. I have received the most heartfelt, warm responses. Usually these include a story about a sister, a father or an uncle who they know with Parkinson’s. Next comes a discussion of the treatments and procedures that helped their loved ones and the conversations always end with a smile of encouragement or a pat on my shoulder. Finally, we part with a shared moment of endearment all because I have Parkinson’s and I own it!
