On The Road Again with Parkinson’s
When I was first diagnosed with Parkinson’s Disease, I thought my travel days were over. Wow, was I totally wrong. If anything, I travel more than before I developed PD and I plan to continue to do so as long as possible. I know there will probably come a time when my mobility will be much more limited than it is now so why wait? Knowing that this may happen has actually made me realize time is truly precious and I need to make the most of it while I can.
Having said this, I must admit that I do not travel as casually as I used to do. I have to plan carefully not to over schedule because I get tired quickly. I usually just bring a carry-on bag, but I am finding it very cumbersome to navigate it down the tiny aisles on the plane. Then it is almost impossible to lift the bag into the overhead compartment. So what is the answer? I either have to check the bag or lighten up by load. I am choosing the later.
I have learned to pack with more awareness to layering and combining outfits. I select travel-friendly clothing such as those from Chico’s called “Travelers” . I also like the 100% cotton items from Fresh Produce which are great for warmer climates. Look for sale items from both of these stores and you can get great discounts on otherwise pricey apparel. In addition, I always wear a lightweight raincoat on the plane making it easy to bring with me without taking up space in the carryon.
If you are flying, take advantage of the special assistance offered by the airlines. For seat selection, I call the special assistance number for the specific carrier I am using and ask them to give me aisle seats. When my tremors are active, I prefer to have at least one side where I am not next to someone. Most airlines offer this as a free service which saves money on seat selections.
Also, do not hesitate to ask for help at the airport and on the plane. For example, use the special TSA aisles when going through security. They are usually less crowded and less demanding. At the gate, speak to the agent about per boarding so the flight attendants can assist you with placing your carryon in the overhead compartment and with finding your seat. I have found the airline staff to be incredibly helpful and pleasant.
In the past, when I travelled, I always took mass transit. I liked to save money, but also enjoyed the challenge of getting around a new city. Now, I am most likely to conserve my energy and use Uber. It is still cost effective and it conserves my energy for other physical activities. Just download the Uber app and it will lead you through the menu.
Especially important when planning your trip is to remember to include lots of down time for resting and regrouping. PD makes you fatigued when you are home and in your regular routine, but it is especially exhausting when you are traveling. Enjoy what you can do and see and do not get frustrated by your limitations. I always feel it is better to do what I can and enjoy it instead of being unhappy with what I cannot do…. Happy trails and safe travels.
Resource for Image: Pinterest
